Though surrounded by family, Chris Geilman is orphaned by an extremely rare disorder called Stiff-Man Syndrome. Stiff-Man Syndrome is a neuromuscular condition in which a hyperactive startle reflex results in all the person's muscles going into a state of spasm and contraction at the slightest stimulation. These spasms rapidly become violent, and are capable of slamming the victim into walls and furniture. The disorder's cause is unknown, although evidence is pointing increasingly to the fact that it is an autoimmune disorder.
Although they appear completely normal, those afflicted with Stiff-Man Syndrome must avoid any situation where they might be exposed to sudden sounds or stimulation. Often, they remain isolated in their home and excluded from normal living. They are orphaned from society by this rare and ruthless disorder.
Stiff-Man Syndrome is difficult to diagnose and completely debilitating to those afflicted. Its treatments are experimental and very costly. Chris has had this disorder for the past 14 years, during which time it has relentlessly increased in severity. She has been denied insurance, does not qualify for government programs and falls outside the domain of other disease. Up to this point, her family, a few physicians and some medical facilities have helped defray some of the exorbitant medical costs she has incurred.
Chris' condition is presently in a state of rapid deterioration. Expensive blood filtering and immunoglobulin infusions are now becoming a necessity. These treatments, however, are not within the financial means of the Geilman family, as they struggle to survive previously incurred medical expenses. They are asking for financial help. Please help fight them fight this ruthless disorder.
A donative account for Chris has been established at First Security Bank. This account will be used to help cover medical expenses, to establish a foundation to help others afflicted with Stiff-Man Syndrome and to promote research concerning Stiff-Man Syndrome.
If you or anyone within the circle of influence you have or they have can help, please mail your contribution to:
The Chris Geilman Stiff-Person Syndrome Account
Any help you could give will be deeply appreciated by the Geilman family.